Testing Fate: Tay-Sachs Disease and the Right to Be Responsible
Paperback | Nov 2016 | University of Minnesota Press | 9780816699964 | 288pp | 216x140mm | RFB | AUD$39.99, NZD$47.99
Hardback | Oct 2016 | University of Minnesota Press | 288pp | 216x140mm | RFB | AUD$126.99, NZD$152.00
Drawing on a range of historical and contemporary examples—from doctors’ early medical reports to YouTube videos—Shelley Z. Reuter shows that true agency in genetic decision-making can be exercised only from a place of cultural inclusion. Choice in this context is in fact a kind of unfreedom—a moral duty to act that is not really agency at all.